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© Charley Supports Ltd |
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Alex prior to being fitted with his Charleywrap |
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Now Alex requires minimal support to sit nice and straight |
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Jake prior to his Charleywrap |
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Jake now |
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Clinton and his dad: it is virtually impossible to tell that Clinton is wearing his brace. |
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ALEX The CharleyWrap has provided Alex an opportunity to breath easier, sleep in a better position, and maintain better head control and arm function. It has decreased his bad movement patterns, and made Alex generally easier to handle and position for his family and carers. The photos really do speak for themselves. Alex has severe spastic quadriplegia/dystonic cerebral palsy. He has a ‘C’ spine (Kyphosis) and his ribs are flaring caused by lack of tone in his trunk. Due to his inability to hold himself up he is unable to maintain head control or have any arm function unless he is in a very supportive piece of equipment (which traditionally would put far too much steel and plastic between me and him!). The only alternative until now was to hold him at his lower back and upper chest, leaving no arms left for me to easily read a book or play with his puppets. Now with the CharleyWrap, sitting together on the floor or cuddling on the couch, he is in a very functional and secure position. We have found the CharleyWrap to be an easy to fit, easy to wash, easy to dry, affordable, quality piece of equipment. Alex shows no signs of discomfort wearing it for extended periods of time, and we can clearly see it will make a big difference to maintaining Alex’s physical needs for a comfortable future. I would like to extend a huge thank you to Jenn for this ingenious invention, and expect to see it as a household name for physiotherapists and hospitals in the future! Anna JAKE Jake is crooked with his posture. The CharleyWrap has made our son nice and straight! and more upright!!!! I was actually crying this morning when he headed off to school...what a difference!!!! Even his taxi driver noticed how nice & straight he was. I know it's very, very early days, (we got it on the 19th May), but to look like this first use - massive results for us!!! So thank you from all of us here, including family, as this has been an ongoing issue since October and they have been through all the goings on with us... Last night when you instructed me on how to put the CharleyWrap on Jake he was upset, but that's normal for having something new, and Jake would have been thinking "what's this I have to wear, something else uncomfy"... but this morning after putting it on and he was in his chair, I asked him how it felt... he gave me his usual massive, lovely smile... Today is Sunday the 23rd of May. Most Sunday's before Jake was as bad with his scoliosis we would go on our family Sunday drives. That stopped as he couldn't travel due to how he was getting. It has been a number of months now since we have been able to all go out as a family, but today we were able to do just that!!!!! Jake was fine the whole time, sitting up nice and straight in his chair and not sore. Many thanks from Jake and all his family... Nikki CLINTON Clinton is a very brave 9 year old boy with Marfan Syndrome. |
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Supportive device for children with low truncal tone |